National Reference Center for Angioedema

LE CREAK

Experts and centers dedicated to patients since 2006

CRÉAK was founded in 2006 by a network of doctors who are experts in angioedema. It is dedicated to all patients with angioedema, whatever its cause.

Our team offers patients and doctors: diagnostic consultations, therapeutic care, personalized care thanks to a therapeutic education program.

The national CRÉAK network offers local support to each patient.


CRÉAK is responsible for several missions, including:

 

➢ Scientific expertise

➢ Medical research

➢ Multidisciplinary support

➢ Raising awareness and informing patients and healthcare professionals


The coordination of CRÉAK is ensured by Professor Laurence Bouillet


Role of CREAK

CREAK Missions

The national reference center (CRÉAK) is responsible for several missions, including: Scientific expertise, Medical research, Multidisciplinary care and awareness and information for patients and health professionals.


infos

Organization of CREAK

CRÉAK is a network of expert centers in France that treat all angioedema, whatever the cause.

This network is managed by a coordinating reference center: the Grenoble Alpes University Hospital, with Professor Laurence Bouillet as national medical coordinator.


Each center in this network is made up of a team of experts with a medical manager in charge.

This organization is designated by ministerial decree for a labeling period of 5 years.


The CRÉAK is made up of several so-called constituent reference centres and also partner centres, in metropolitan France and the French overseas territories. These reference centres were able to be designated as long as they met one of the following conditions:

  • Provide pediatric or adult care that complements that of the coordinating site and thus structure the pediatric/adult link.
  • Provide the same expertise, recourse, research or training activities as the coordinating site.

CREAK CENTRE NATIONAL DE GRENOBLE

coordinatrices

Professor Laurence BOUILLET

  • Head of Internal Medicine Department
  • Clinical Immunology - Grenoble University Hospital
  • National Coordinator of CREAK
  • Head of the rare diseases commission CHU Grenoble (COMARE)
  • Inter-regional coordinator of internal medicine teaching
  • Vice President of the French Society of Internal Medicine (SNFMI)

Dr. Isabelle BOCCON-GIBOD

  • Hospital practitioner in Clinical Immunology
  • CHU de Grenoble
  • UF CREAK clinical manager
  • National Reference Center for Angioedema.
  • ACARE GA2LEN European Reference Center.
  • National Coordinator of the EDUCREAK ETP Program

Angioedema

Angioedema is a sudden swelling of the skin. There are several types of angioedema, the cause and expression of which can vary. Depending on its etiology, angioedema can be mild or more severe.

The patient pathway

How to define your patient journey, help you better live with your illness within your health journey, your care journey thanks to the expertise of CREAK.

The ETP program

The therapeutic education program and all the benefits for your daily life.

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